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The Impact You Made During Parkinsonís Awareness Month

Parkinson’s Awareness Month, April 2011, has come to a close.

The following personal stories shared by PDF advisory council members, research advocates, quilters and others, highlight the inspiring work done by so many individuals in the following areas:

Top: Ruth Pearce, Patti Meese, Gordie Guist, Marian Bumala, Barbara Hebert; Bottom: Jim Patterson, John Baumann, Carolyn Weaver


Spreading the Word…

  • 20 individuals, including Ruth Pearce in Gainesville, GA, displayed the Parkinson’s Quilt in 11 states. An estimated 2,500 people came to visit the quilt!
  • Many of you, including Jim Patterson of Dunedin, FL, and Patti Meese of Scottsdale, AZ, successfully had proclamations signed by local, state, and federal officials. On April 5, the United States Senate also signed a proclamation, making Parkinson’s Awareness Month official around the country.
  • Chock full o’Nuts helped in PDF’s efforts by featuring this awareness message on one million coffee cans! Learn more at

Educating Yourself & Others...

  • More than 1,400 of you wore one of the Parkinson’s Awareness Month t-shirts designed by winners of the annual design contest, Marian Bumala, of La Honda, CA, and Stephanie Longo, of Cherry Hill, NJ.
  • Numerous individuals made strides in educating their communities. PDF research advocates John Baumann of Louisville, KY, and Linda Hinkle and Mary Yeaman of Indianapolis, IN, partnered with the Indiana Pacers to host an event that included a Rock Steady boxing demonstration, educational handouts and a reading of a proclamation during half time. PDF research advocate Carolyn Weaver from Michigan brought posters and informational materials to 13 different locations in her state.
  • Libraries proved a great spot for education. PDF research advocate Gordie Guist, in Camden, ME, set up a display of educational materials and books about Parkinson’s.

Supporting the Cure...

  • More than 750 of you helped PDF to raise $200,000, (well over the initial $100,000 goal) for the Irving G. Brilliant Parkinson’s Research Challenge. Because the challenge met its goal, Mr. Brilliant also raised his matching gift to $200,000, which means that $400,000 total will benefit research.
  • PDF’s fundraisers, our “Champions,” held unique fundraising events across the country, raising $38,000. The Mid-Hudson Parkinson’s Support Group held a three-mile walk in Poughkeepsie, NY with 200 participants, raising more than $6,000! Barbara Hebert, a nursing home administrator and person living with Parkinson’s, brought the first Parkinson’s walk to Ocala, FL and raised nearly $3,000.

What’s your story? Did you hang up a poster, host an event or wear the Fight Parkinson’s bracelet?

In order to assess our impact as a community — and better support you next year — we ask you to fill out a short 14-question survey about your activities at