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PDF News: Spring 2011

Advisory Council Member Raises $37,000

Nearly 200 music lovers and others dedicated to the fight against Par­kinson's disease (PD) gathered for the 8th Annual Music for Parkinson's concert on December 5, at Rye Country Day School in Rye, NY.  The event, organized by Music for Parkinson's Research, raised $37,000 in net proceeds for the research programs of the Par­kinson's Disease Foundation (PDF).

David Eger, Music for Parkinson's

The afternoon featured performances by several leading chamber music artists including John Stine, Gena Raps and the Attacca Quartet.  After the concert, guests enjoyed a wine and cheese reception and chatted with the musicians.  Music for Parkinson's was founded by three individuals, led by David Eger, Ph.D., who has worked with PDF for many years, in large part as an inaugural member of PDF's People with Parkinson's Advisory Council, a group that advises the foundation on its research, education and advocacy programs. 

Dr. Eger noted, “We were thrilled by the support from friends, family, community members and PDF staff and board members who came together to help raise funds to find the cure for this disease.”

Tribute to PDF PPAC-ers

The Parkinson’s Disease Foundation (PDF) mourns the recent loss of two founding members of its People with Parkinson’s Advisory Council (PPAC), Lillian Snyder, of Wheaton, IL and Bruce Talbot, of Moretown, VT.

PPAC was created to provide PDF with perspectives on research-funding priorities, community needs and ways to better serve people living with Parkinson's through education and advocacy programs.  Ms. Snyder and Mr. Talbot began their terms in 2006.

Lillian SnyderMs. Snyder was diagnosed with Parkinson’s in 1998.  She was an advocate for educating others about the disease.  She wrote articles on how to explain Parkinson's to grandchildren and tips for moving to a new home, and championed brain donation.  She was also a member of PDF’s Creativity and Parkinson’s Project and her painting, "The Birch Tree," was featured in PDF’s 2010 wall calendar.

Mr. Talbot was diagnosed with Parkinson’s in 1994.  He was best known as the enthusiastic captain of the PDF Pacers, at the annual Parkinson’s Unity Walk in New York.  Dedicated to helping those living with Parkinson’s navigate its challenges, he was a contributor to the PDF newsletter, authoring, “Making a Move with Parkinson’s,” in the Spring 2007 issue.

Bruce TalbotMr. Talbot was one of the PPAC members who lobbied PDF for the creation of PDF’s first Resource List.   He touched PDF’s staff and board by creating a “proclamation” thanking PDF for being the first organization to have an advisory board made up of people affected by PD.  His book on his journey with chronic illness, The Heart of the Matter, will be published posthumously. 

PDF Executive Director Robin Elliott noted, “Lillian was a true and beloved friend of PDF whose paintings and words brought hope to others. Bruce is remembered for the kindness, enthusiasm and grace that inspired everyone around him.  We will certainly miss both of these dear friends.”