The cornerstone of the PAIR program is a national network of more than 200 Research Advocates from 42 states who are actively changing how research is done by setting research priorities, partnering with researchers and informing the PD community.
“By helping to decide what research should take priority, I can ensure studies reflect the needs of people with Parkinson's.”
Ron Wincek, PDF Research Advocate, Patient Representative at PDF's Community Choice Research Award Conference on Gastrointestinal Function, Lawrenceville, GA
“As an associate member of a national PD research consortium, I share the perspective of people with Parkinson's with research professionals. My goal is to provide suggestions on making study participation an easy and clear process, boost study recruitment and emphasize issues important to people with Parkinson's disease.”
Becky Houde, PDF Research Advocate, Associate Member, Parkinson Study Group, Waltham, MA
“This is a hard disease because there is no cure. The only way we are going to speed the pace of drug development is by getting involved in research. Clinical trials sorely need people with PD and those without it. As PDF Research Advocates, my husband Al and I bring this critical message to support groups, health professionals and students."
Jane Denmark, PDF Research Advocate, Bay Minette, AL