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Coping with a Diagnosis
ďThe worst day of this disease was the day I was diagnosed. The best day was when I understood that I could do something about it. It gave me back a sense of control in my life, and some power.Ē --Phyllis, 63, five years after diagnosis
If you or someone close to you has recently been diagnosed with Parkinson’s disease (PD), you are likely experiencing many emotions and have many concerns and questions.
Remember that you are not alone. As many as one million people in the US and an estimated seven to 10 million worldwide live with Parkinson’s disease. These estimates do not account for cases of PD that are unreported, undiagnosed or misdiagnosed.
With a diagnosis now in hand and the freedom to learn at your own pace, you can begin to understand PD and its treatments and the role they will play in your life. Your diagnosis can be the first step to taking charge of your life with Parkinson’s disease. What are some next steps?
Hear and Read Real Stories from People with PD:
It is common for many people to experience a wide range of emotions upon diagnosis from shock, to anger and even to sometimes a sense relief at being able to name symptoms (perhaps a small tremor or weaknesses) that have gone unexplained or misdiagnosed for years. Hear from others who may have had an experience similar to yours.
Inform Yourself about PD
You will need time to adjust to the new diagnosis, so educate yourself about PD – slowly. PDF provides informative publications and website, a hotline, suggestions of local support groups and physicians and online and video resources to help you and your family cope and become informed.
Seeking Out a Specialist
Category: Newly Diagnosed
Resource Type: Publications
Publication Date: 2012
Author: Parkinson's Disease Foundation
Publisher: Parkinson's Disease Foundation
Toll Free: (800) 457-6676
Associated URL: www.pdf.org/en/factsheets
Address: 1359 Broadway, Suite 1509
City: New York Zip: 10018
State: New York
This fact sheet offers in-depth information and practical tips on choosing the right doctor. It includes facts about why it's important to see a Parkinson's specialist. Also offered in: Spanish.