Coping with a Diagnosis

“The worst day of this disease was the day I was diagnosed. The best day was when I understood that I could do something about it. It gave me back a sense of control in my life, and some power.” --Phyllis, 63, five years after diagnosis

If you or someone close to you has recently been diagnosed with Parkinson’s disease (PD), you are likely experiencing many emotions and have many concerns and questions.

Remember that you are not alone. As many as one million people in the US and an estimated 10 million worldwide live with Parkinson’s disease. These estimates do not account for cases of PD that are unreported, undiagnosed or misdiagnosed.

With a diagnosis now in hand and the freedom to learn at your own pace, you can begin to understand PD and its treatments and the role they will play in your life. Your diagnosis can be the first step to taking charge of your life with Parkinson’s disease. What are some next steps?

Hear Real Stories from People with PD:

It is common for many people to experience a wide range of emotions upon diagnosis from shock, to anger and even to sometimes a sense relief at being able to name symptoms (perhaps a small tremor or weaknesses) that have gone unexplained or misdiagnosed for years. Hear from others who may have had an experience similar to yours.

Hear from People with Parkinson's on this Video for the Newly Diagnosed

Inform Yourself about PD:

You will need time to adjust to the new diagnosis, so educate yourself about PD – slowly. PDF provides educational publications and website, a HelpLine, suggestions of local support groups and doctors and online and video resources to help you and your loved ones to cope and become informed.

Get Started with the Secrets, Myths and Misconceptions of Parkinson's

Browse Basic Information on Parkinson's

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