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New Publication Lists Hundreds of Resources for People with Parkinson's
The Parkinson’s Disease Foundation (PDF) is pleased to offer the Parkinson’s Disease Resource List, a free publication designed for people with Parkinson’s disease (PD), their families and caregivers and health professionals.
This 100-page comprehensive print and online guide lists more than 650 community resources located throughout the US and around the world. It includes many of the resources that may be needed by a person with Parkinson’s, such as national and local Parkinson’s groups and movement disorder centers and resources addressing clinical trials, medical equipment, financial, legal and insurance assistance and caregiver support.
The Parkinson’s Disease Resource List also includes personal stories from people living with Parkinson’s and sections geared specifically toward the newly diagnosed and those living with young onset and advanced PD.
The concept for the PD Resource List developed from conversations with PDF’s People with Parkinson’s Advisory Council (PPAC). Its 13 members spoke of the urgent need for a centralized resource that would compile information from all sources — websites, books, organizations, audiovisual materials, webcasts and more. Such a resource would be used by people with Parkinson’s at any age and any stage of the disease and by their families, friends and care partners.
PPAC member Rhona Johnson noted, “As people live with Parkinson’s, the questions they have vary tremendously — whether it’s wondering how to deal with the diagnosis, deciding when to tell an employer, considering joining a clinical trial, or finding home healthcare. Now the Parkinson’s Disease Resource List will help people find answers to all of these questions.”
You can order the PD Resource List by calling (800) 457-6676, emailing firstname.lastname@example.org or ordering with PDF's website form. Healthcare professionals and support group leaders are welcome to order multiple copies. The online Resource List is available at www.pdf.org/resourcelist.
The print and online versions of this publication have been made possible through an unrestricted educational grant from Novartis Pharmaceuticals.