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PINS: The One-Stop Shop For PD Advice!
Have you ever had to search for a support group, a neurologist or speech therapist? Do you have questions about possible side-effects of your medications? Are you a caregiver who is wondering about the best way to approach a delicate issue? If so, you are one of the many thousands of people living with Parkinson's disease who constantly find themselves encountering questions that need answers. The Parkinson's Disease Foundation (PDF) receives many calls and emails every day from people like you who need help navigating the vast sea of information available. To assist you, we are investing new resources in the re-organization and expansion of our Parkinson's Information Service (PINS): the "one-stop shop" for the person who wants to know and learn more about Parkinson's disease.
One of the main features of the service is a US toll-free number, (800) 457-6676, which is available from 10 AM to 5 PM EST. This line is staffed by Parkinson's information specialists, operating out of our Chicago office, who can answer most questions about Parkinson's disease, its treatments and therapies, ongoing research progress and coping strategies. If a question is beyond their training, they refer it to one of a dedicated group of neurologists and other healthcare specialists who are experts in the diagnosis and treatment of Parkinson's disease. Our staff also maintains referral lists of experienced neurologists that cover most areas of the US and many major cities abroad. In some cases, we may even be able to help you find a PD support group in your area.
After speaking with one of our specialists, callers can request a custom-tailored package of printed materials on Parkinson's disease. This information covers a wide range of topics related to Parkinson's via a variety of educational materials that PDF offers and which you can use as a reference for any future questions that may arise.
For people who feel more comfortable asking questions via email, another way to use our service is to access our Ask the Expert section, a "Q & A" feature of our website located at www.pdf.org. You can submit your own question or peruse answers to the many commonly-asked questions that are already archived. Newly submitted questions are answered by PDF's team of physicians and Parkinson's information specialists within 15 business days. You can also view a complete list of our publications and programs, download our most recent booklets and pamphlets and order your print copies online.
We know that finding the answer to an important question is not always easy. While we do not claim to have all of the answers yet, PDF is committed to building PINS to become the place to have your questions answered. And since many of you, as people with Parkinson's, are already experts - some doctors have observed that this avid search for knowledge may actually come with the condition! - we would greatly appreciate your tips on services or organizations that you have found to be particularly helpful. You can help us offer the best assistance to other people living with Parkinson's by sharing your knowledge. Stay tuned for more information and updates on exciting new features of our expanded Parkinson's Information Service!