Display the Quilt
Display the Parkinson’s Quilt in your community to show the impact of PD on your community.
Quilts Around The Country
PDF applauds those who have raised awareness by displaying blocks of the Parkinson’s Quilt at different events throughout the country. Each quilt display radiates the contributions of those who are touched by Parkinson’s. By sharing the quilt in various communities, these people are raising widespread awareness of the impact of Parkinson’s and bringing us closer to one day finding a cure. Check out these stories of past quilt displays, or start planning a display in your own community today!
Parkinson’s Quilt Visits Brookfield, IL for Annual Parkinson’s Picnic
In May 2011, two blocks of the Parkinson’s quilt took a trip to the Brookfield Zoo in Illinois for the fifth annual “Focus on a Cure Picnic in the PARKinson's.” The quilt display was organized by Kenneth Glowienke, of Oswego, IL.
Mr. Glowienke, who contributed to these two quilt blocks, is one of 31 quilters from Illinois. He lives with Parkinson’s and is the co-founder of a local non-profit organization dedicated to raising funds for Parkinson’s research. He is also a member of a local support group and a patient liaison for Rush University Hospital (also a PDF Research Center), providing support to people with young onset Parkinson’s.
The quilt display was part of a community picnic which also featured a speech by Mr. Glowienke, an appearance by local radio celebrity Drew Walker, refreshments, games and prizes, and educational materials.
Mr. Glowienke said, “I believe that the quilt serves as a reminder that we need to continue to fight for a cure for this disease. I’m grateful for the opportunity to bring these pieces of the quilt to my community.”
Parkinson’s Quilt Displayed at Quilt Show in Merrimack Valley, MA
In April 2011, Andrea Bursaw, of Newbury, MA brought Parkinson’s awareness to Plaistow, NH by displaying a block of the Parkinson’s Quilt at the Merrimack Valley Quilters Guild’s annual quilt show.
Ms. Bursaw, a skilled quilter and member of the guild, is one of 11 Parkinson’s quilters from Massachusetts. She decided to become involved in this particular quilting project because her close friend lives with Parkinson’s.
Ms. Bursaw drew inspiration for her two-by-two foot quilt panel from her close friend’s son. The panel features a picture of a dragon drawn by her friend’s eight-year-old son, who told Ms. Bursaw that the dragon represents his mother’s fight against Parkinson’s. Each color that he used represents a different quality in this fight: red is for heart, yellow is for hope, blue is for bravery, green is for the desire to be well and brown is for endurance.
Ms. Bursaw’s quilt panel, which is sewn together with 16 others, was displayed in the Merrimack Valley exhibit hall alongside more than 125 other quilts. Next to her display was a poster explaining its role in the Parkinson’s Quilt project and informative booklets were also provided.
Ms. Bursaw invited the community to join her at the annual quilt show. She said, “The 17 panels of the Parkinson’s Quilt block that were displayed all combine beautifully, and I believe that they attracted the attention of the community. I’m grateful for the opportunity to display a piece of the Parkinson’s Quilt at the annual quilt show and believe that it raises awareness and educates people about Parkinson’s disease.”
Parkinson’s Quilt Visits Nacogdoches, TX for Parkinson’s Awareness Month
Maria De Leon M.D., of Nacogdoches, TX, celebrated Parkinson’s Awareness Month, April 2011, by bringing a block of the Parkinson’s quilt to her community at Memorial Hospital and the North Street Church of Christ.
Dr. De Leon, a quilter and member of PDF’s People with Parkinson’s Advisory Council, is a retired neurologist specializing in movement disorders who also lives with Parkinson’s. She is one of 49 quilters from Texas.
Her two-by-two foot quilt panel is a tribute to her grandmother, who also lived with the disease. Dr. De Leon’s quilt panel, which is sewn together with 15 others, depicts things held dearly by Dr. De Leon and her grandmother, such as their Southwestern culture, religion, sewing and flowers.
Those who attended the quilt display at the hospital were able to ask Dr. De Leon, questions about Parkinson’s and browse educational materials. The quilt display at the church featured presentations from various experts in the Parkinson’s community, such as social workers and speech therapists, as well as a talk by Dr. De Leon herself.
Dr. De Leon said, “My goals for these events were to raise interest, awareness and funds for Parkinson’s in Nacogdoches. I’m grateful for the opportunity to display a piece of the Parkinson’s Quilt in my community and I believe that it further helped to generate interest in and awareness of the cause.”
Parkinson’s Quilt Visits Rolling Meadows, IL for “Look Good, Feel Good” Parkinson’s Awareness Month Event
Jo-Ann Golec, of Rolling Meadows, IL brought a block of the Parkinson’s Quilt to inspire those at an American Parkinson Disease Association hosted event called “Look Good, Feel Good,” at the Meadows Club in Rolling Meadows on April 9, 2011. She demonstrates that a quilt can be a great addition to any event!
Ms. Golec lives with Parkinson’s and is a board member of the APDA’s Midwest Chapter. She and friend (and fellow APDA Board Member) Jean Burns created a quilt panel featuring Ms. Golec’s picture. The panel is sewn together with 15 others.
In addition to the quilt display, APDA’s event kick-off, which welcomed over 350 guests, included presentations by PD experts from the medical, physical therapy and other fields who touched on the theme of how to look good and feel good with Parkinson’s.
Ms. Golec said, “My goal for this event was to teach people with PD that with the right combination of medication and exercise, they can both look good and feel good. I’m grateful for the opportunity to have brought the quilt to Rolling Meadows and believe that it gave people hope, and inspired people to support the Parkinson’s cause.”
Parkinson’s Quilt Raises Awareness in Gainesville, GA
From March to April 2011, Ruth Pearce, of Gainesville, Georgia, raised Parkinson’s awareness by bringing a block of the Parkinson’s Quilt to her local continuing care community, Lanier Village Estate. The opening ceremony of Ms. Pearce’s quilt display on March 11 drew in over 350 community members.
Ms. Pearce, who lives with Parkinson’s and facilitates the Lanier Village Estate’s Parkinson’s support group, is one of 10 quilters from Georgia. Her two-by-two foot quilt panel depicts autumn leaves, which represent how Parkinson’s disease comes to people in the “autumn years” of their lives and affects all types of people. Ms. Pearce’s panel is sewn together with 15 others.
The quilt display opening ceremony featured speeches by local religious leaders, as well as educational materials and light refreshments. Ms. Pearce noted that many of the attendees were awed by the quilt when it was unveiled, and came to sit directly in front of it to admire the panels, which express each quilter’s personal experience with Parkinson’s disease.
Ms. Pearce said, “Many of those who attended quilt display throughout the week came up to me and expressed their thanks for bringing this piece of the Parkinson’s Quilt to Gainesville. They told me that they now have a better understanding of what Parkinson’s disease is. I’m grateful to have had this opportunity to raise awareness of Parkinson’s in Gainesville – especially right before Parkinson’s Awareness Month.”