Adjust Text Size:change font sizechange font sizechange font sizechange font sizechange font sizechange font size

Share Your Story

Annie Konopka is a mother of two and she has been married to Joe for 20 years. Before she married Joe, Annie was very interested in a TV/Modeling career. She attended John Casablanca Modeling School and did some modeling in the late 80ís. Annie was a contestant in the 1987/1988 Miss NJ Pageant and the 2007 Mrs. NJ Pageant.

After her first child was born in 1995, Annie started to experience some of the early symptoms associated with Young-Onset Parkinsonís disease as a stay-at-home mom. However, when Annie became pregnant with her second child, the symptoms disappeared. After her second child arrived, the symptoms returned and Annie became very concerned. After 4 years of visiting general neurologists and movement disorder specialists, she was finally diagnosed with Young-Onset Parkinson's disease by a doctor from UPenn.

Currently, Annie views her disease as a personal challenge and does not sit back and wonder why she received this diagnosis. Over the past 4 years, she has become involved in many aspects of the Parkinsonís community.

In 2005, Annie and her friend Judy from Tennessee, who also suffers with Parkinsonís disease, started USA PD Pals online support & information group. USA PD-PALS made their debut at the 12th Annual Parkinsonís Unity Walk in 2006, raising over $17,000.00.

After this top ten finish, Annie hosted the 1st Annual Have A Heart for Parkinson's Valentine Dinner Dance in February 2007 where she raised over $7,400.00. That was the first step in her fundraising efforts for the 2007 Parkinson's Unity Walk where she raised over $14,000.00. Adding this total to an additional $14,000.00 from her team resulted in a grand total of $28,000.00, which catapulted the team to a top ten finish for the second year in a row.

Annie served as the 2nd Vice President on the board of New Jersey chapter of the American Parkinsonís Disease Association 2007-2009, volunteers with the Parkinsonís Alliance and is team captain for USA PD PALS.

In addition to these activities, Annie self published her 1st childrenís book ďA Tale of a Parkie PrincessĒ, which was available on barnesandnoble.com and other online book stores in March 2008.

She received the ď2005 Women Who Make MagicĒ Award, and the 2007 NJAPDA Excellence in Service Award. Also, when she competed in the 2007 Mrs. NJ USA pageant, she received the Peopleís choice award and 1st runner up for the Community Service Award.

In the summer of 1998 Annie and her family were selected to participate in a Parkinson's awareness campaign. The campaign, titled "Living with Parkinsonís Disease", featured Annie's family in a DVD and brochures were distributed in doctorís offices. Her story was also selected to appear in the "Proud Hands of Parkinsonís" coffee table book, which was launched in the spring 2008.

Annie's continues to raise funds and awareness in hopes for a cure, her goal in the near future is to start her own non-profit organization that would directly benefit Parkinson's patients and their families.

".......Do not wait for leaders...do it alone, person to person." --Mother Theresa

Posted by Annie Konopka on September 16, 2011


File & Resource Types Legend

book
Books
video
Videos
website
Websites
news
Publications
org
National Organizations
localorg
Local Organizations
personal_stories
Personal Stories
pdf
PDF Document
excel
Excel Document
word
Word Document
window
Opens new Window for non-PDF Website
rss
Subscribe by RSS