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Share Your Story

It has been 15 years since I was diagnosed in 1996 with Parkinsonís .Never deny a diagnosis, but do deny the negative verdict that may go with it. I was determined to absorb the blow, suck up all fear, pain, confusion and doubt, and be grateful that a small group of friends and family were there to catch whatever spilled over.

While Parkinsonís, which is caused by a chemical imbalance in the brain is usually understood to be a disease characterized by loss of control over body movements, some people also experience concentration, problem-solving, concept formation, depression and memory.

Despite all that I have lost I continue to derive pleasure from life. Regular exercise, yoga has been indispensable in helping me achieve some sense of well-being.

Telling my story of a degenerative neurological disorder from inside out is an act of defiance. I have good days and bad, on the best day when I come out of the clouds, I have brief periods when I am sharp, but on others, I falter and am keenly aware of what is happening. Never blame a day in your life. Good days give happiness. Bad days give experience and so there are only bad moments in a good day.

Use your faith in God I often find comfort in prayer, especially if you pray for others in a similar situations. But whether you believe your illness is a part of Gods plan or not, you should have a plan of your own. Find purpose even in life circumscribed by illness is essentials. God has your gifts for you. A key for every problem, A light for every shadow, A plan for every tomorrow and A joy for every sorrow For me I can still communicate albeit not nearly as well as before. I can counsel other Parkinsonís people I am still physically active.

By sharing this story it is my hope that those who suffer from similar disease especially those struggling with the disease that steals control of mind and body along with their loved ones will find some comfort that I may be able to articulate and thereby validate what they feel and experience but may not be able to express. ďHold fast to your dreams for if dreams die. Life is a broken winged bird that cannot fly.Ē

Posted by Ronald Rodrigues on March 21, 2011


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