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Reach out to your Members of Congress about Parkinson's Community Priorities

PDF has received another important update from the Parkinson’s Action Network (PAN) about how you can make a difference this summer by reaching out to your elected officials. Share your story and let them know how Parkinson's Disease affects you.


From PAN

Unless the debt ceiling talks alter the schedule, during the month of August, your Senators and Representative will be back at home working and meeting with constituents like you.  The August recess provides the perfect opportunity to advocate for the Parkinson's community by reaching out to and speaking with your Members of Congress, either individually and/or at a town hall meeting.

Reaching out has never been easier!  Here are some options:

  • Send a letter to the editor of your local newspaper.  Here's a template you can customize, highlighting the importance of funding for the National Institutes of Health.
  • Find and attend a town hall.  Not sure where they're being held?  Check your members' individual websites, the local newspaper, and/or Facebook and Twitter accounts, or call their offices.

When reaching out to your elected officials individually, make sure to tell your personal story, talk about Parkinson's disease, and how it affects you and your family.  If attending a town hall meeting, ask your Member what they are doing to help the Parkinson's community.  During the meeting or town hall, ask your Member of Congress to:

  • Cosponsor the Neurological Diseases Surveillance System Act of 2011 (S.425/H.R. 2595). More information.
  • Fund the National Institutes of Health (NIH) in the Fiscal Year 2012 Appropriations bill and support establishment of the National Center for Advancing Translational Sciences (NCATS). More information.

For more detailed information about meeting with your Members of Congress, please see here.


PAN is the voice of the Parkinson's community in Washington, DC.  In 2011, PDF is supporting PAN with a grant of $200,000.

Source Date: Jul 26 2011