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Ask Your Representative to Cosponsor H.R. 2595 to Improve Parkinsonís Data

PDF has received another important update from the Parkinson’s Action Network (PAN) about the National Neurological Diseases Surveillance System Act, H.R. 2595. This act would create a disease registry to help determine incidence and prevalence of Parkinson’s and lay a foundation for better evaluating and understanding disease factors.


From PAN

On July 20, 2011, Representatives Chris Van Hollen (D-MD) and Michael Burgess (R-TX) cointroduced the National Neurological Diseases Surveillance System Act. 

As you may remember, this legislation passed the House in the last session of Congress; however because it did not pass in the Senate last session, the bill must once again be considered and approved by the House.

The bill will create, for the first time, separate, permanent, and coordinated national registries at the Centers for Disease Control and Prevention (CDC) for diseases including Parkinson's disease and multiple sclerosis (MS).  The surveillance system will rely upon existing databases including Medicare, Veterans Affairs, state registries, and other databases to determine the incidence and prevalence of diseases including MS and Parkinson's disease across America.

As you know, we do not have accurate information on how many Americans are battling Parkinson's disease.  The surveillance system will determine incidence and prevalence of Parkinson’s and lay a foundation for better evaluating and understanding disease factors, including geographic clusters of diagnoses, variances in gender ratio, changes in health care practices, and changes in disease burden and population over time.

Ultimately, better data about Parkinson’s disease will help move important research and treatments forward.

Please ask your Representative to cosponsor 2595, the National Neurological Diseases Surveillance System Act.  If your Representative has already signed on, you will be asked to thank them for their support.

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PAN is the voice of the Parkinson's community in Washington, DC.  In 2011, PDF is supporting PAN with a grant of $200,000.

Source Date: Jul 21 2011