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Ask Your Senator to Support S. 425 to Improve Parkinsonís Data

PDF has received another important update from the Parkinson’s Action Network about the National Neurological Diseases Surveillance System Act.  This act – which passed the US House of Representatives in September 2010 and was introduced to the Senate as S. 425 on March 1, 2011, by Senator Mark Udall (D-CO) – would create a  disease registry to help determine incidence and prevalence of Parkinson’s and lay a foundation for better evaluating and understanding disease factors.

PAN has let us know that Chuck Schumer (D- NY) and eight other senators have joined Senator Udall and his five colleagues as co-sponsors. Read below and take action today by asking for support from your Senators or thanking them if they are already on board.

From PAN

On Tuesday, March 1, 2011, Senator Mark Udall (D-CO) introduced the National Neurological Diseases Surveillance System Act as S. 425 with co-sponsors Sen. Bob Casey (D-PA), Sen. Johnny Isakson (R-GA), Sen. Mike Johanns (R-NE), and Sen. Debbie Stabenow (D-MI).

Other co-sponsors now include:

  • Sen. Jeff Bingaman (D-NM)
  • Sen. Saxby Chambliss (R-GA)
  • Sen. Kay Hagan (D-NC)
  • Sen. Mary Landrieu (D-LA)
  • Sen. Robert Menendez (D-NJ)
  • Sen. Lisa Murkowski (R-AK)
  • Sen. Charles Schumer (D-NY)
  • Sen. Olympia Snowe (R-ME)

The bill will create, for the first time, separate, permanent, and coordinated MS and Parkinson's disease national registries at the Centers for Disease Control and Prevention (CDC).  The surveillance system will rely upon existing databases including Medicare, Veterans Affairs, state registries, and other databases to provide more accurate information on how many Americans are battling Parkinson's disease.

Ultimately, better data about Parkinson’s disease will help move important research and treatments forward.

To make this data system a reality, the Senate must now take action.

Please ask your Senators to cosponsor S. 425, the National Neurological Diseases Surveillance System Act.

Take Action

PAN is the voice of the Parkinson's community in Washington, DC. In 2010, PDF is supporting PAN with a grant of $200,000.

Source Date: May 19 2011
Source Publication: Parkinson's Action Network
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