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Parkinson's Action Network Will Host 10th Annual Forum

Research and Education Forum & Public Policy Forum Will Bring Leaders in Science, Advocates From Across the Country to Washington, D.C.

(Washington, D.C.) Ė The Parkinsonís Action Network (PAN) has invited advocates, scientists, researchers and members of the Parkinsonís community from around the country to attend the 10th Annual Forum, Sunday, March 28 through Tuesday, March 30. The event will be held at the Marriott Metro Center in Washington, D.C.

ďI am sure that this will be the most productive Forum to date,Ē said PAN Board Chairman Jeffrey C. Martin. ďIím looking forward to hearing about the progress that is being made through federal research towards a cure.Ē

The Research and Education Forum, held Sunday, March 28, will feature a scientific overview of Parkinsonís disease research, a briefing on the funding of federal programs, and a discussion of emerging therapies for Parkinsonís disease. The keynote speaker at the luncheon held that day will be Dr. Story C. Landis, Director of the National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health. Dr. Landis will discuss the status of Parkinsonís disease research initiatives and activities at NINDS with the participants.

On Monday, March 29, events continue with the Public Policy Forum, featuring an advocacy training session, a review of the PAN Action Agenda, an exercise session for Parkinsonís patients with John Argue and the Lee Silverman Voice Treatment. The featured speaker that day will be PAN President Joan I. Samuelson, who will discuss advocacy and its impact on public policy issues relating to a cure for Parkinsonís disease.

ďThe Forum promises to be an important time for Parkinsonís advocacy,Ē said Samuelson. ďI hope to not only see many old friends there, but new faces as well. Together, weíre going to make a difference and find a cure for this terrible disease.Ē

On Tuesday, March 30 Ė the final day of the Forum Ė advocates will go to the Capitol to meet with Senators and Representatives to discuss relevant Parkinsonís disease funding. The event will close with the Louis Fishman Awards Dinner at the Marriott. During the dinner, awards will be presented to Michelle Lane of Louisiana and Murray Charters of British Columbia, Canada. Lane, who was diagnosed with Parkinsonís disease in June of 2000 at age 32, will receive the Louis Fishman Advocacy Award for her outstanding work as the PAN Louisiana State Coordinator. Charters, who was diagnosed with Parkinsonís disease in 1994 at age 49, will receive the first annual Award for Outstanding Service to the Parkinsonís Community.

ďThis Forum is perfectly timed to take place just before the start of April, Parkinsonís Disease Awareness Month,Ē said PAN Executive Director Amy L. Comstock. ďI hope that our advocates will be able to take the information from this important event back to their communities and continue our fight for a cure.Ē

More information about the PAN 10th Annual Forum can be found at: www.parkinsonsaction.org or by calling: (800) 850-4726.

Founded in 1991, PAN is the unified education and advocacy voice of the Parkinsonís communityóover one million Americans and their families. Through education and interaction with the Parkinsonís community, scientists, lawmakers, opinion leaders, and the public, PAN fights for a cure by increasing awareness about Parkinsonís disease and seeks increased federal support for Parkinsonís research. For more information on the Parkinsonís Action Network, please visit www.parkinsonsaction.org or call 1-800-850-4726.

Source Date: Feb 27 2004