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ParkinsonLink: Meet the Advocates Changing Research

Just four years ago, PDF, along with members of the research community and 25 people with Parkinson's disease launched the Parkinson's Advocates in Research (PAIR) program. Now, there are 200 advocates working with the research community to speed new treatments. Learn about this program and how working with Research Advocates could benefit your work.

Latest Training in Chicago Brings New Advocates, New Focus on Inequalities

Last month's Parkinson's Advocates in Research training brings PDF's advocacy network to a total of 200 people with Parkinson's and care partners! The new Research Advocates will join their peers in addressing issues that can slow down research and delay new treatments. This includes a new priority area for PAIR: inequalities in research studies.
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Veteran PDF Research Advocates Make Progress

Are you wondering how Research Advocates work to speed new treatments? From Israel and Cliff's work on patient-centered research, and Steve's passion for providing transportation to Bernie's dedication to community education, these real-life stories provide a glimpse into the work of the PAIR program.
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How You Can PAIR Up

Will you join the movement? There are several ways to do so:

  • PAIR Up with a Research Advocate: Would you like help developing clinical trial recruitment plans or reviewing clinical study protocols? Would you like feedback on which types of research (and symptom relief) are most important to people with Parkinson's or someone to speak with local support groups about research? We have a Research Advocate who can help you. Email us at info@pdf.org to find a Research Advocate in your community.
  • Spread the Word about PDF's Online Course: Do you have a patient interested in research? PDF's free course will prepare him or her to understand the science of Parkinson's and the process that brings new treatments to market. Those who complete the course have the opportunity to collaborate with Research Advocates in your community on ongoing projects.

Take the Online Course
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PDF's work in Parkinson's research, education and advocacy is made possible by your contributions. Make a donation today to support our mission. Thank you for your generosity.
 
If you have or believe you have Parkinson’s disease, then promptly consult a physician and follow your physician’s advice. This email is not a substitute for a physician’s diagnosis of Parkinson’s disease or for a physician’s prescription of drugs, treatment or operations for Parkinson’s.