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ParkinsonLink: Become a Research Advocate

PDF just welcomed 40 new members into its growing network of more than 100 Parkinson’s research advocates. Get involved by becoming a research advocate or, if you are a health care professional or scientist, by partnering with PDF advocates to improve the clinical research process. Learn more if you are:

 


Meet the Newest Research Advocates

Last week, 40 people with Parkinson’s completed a three-day training program, the Third Annual PDF Clinical Research Learning Institute, which has prepared them to advocate for the inclusion of people with Parkinson’s in therapy development.  Our expanding network now includes more than 100 research advocates from 36 states.

What did they learn? Why do we need your help in the clinical research process?

Hear from an Advocate 

 

Take Action, Become a Research Advocate in Your Community

You too can become a PDF research advocate, by using PDF’s online tools.  Start by testing your Parkinson’s clinical research IQ.  Then learn the facts and use PDF’s tools to spread the word in your community.

What’s Your Clinical Research IQ? 

Become a Research Advocate  

 


Meet the Newest Research Advocates

Will you partner with PDF research advocates to improve the clinical research process?  

More than 100 PDF research advocates, from 36 states, are looking for ways to partner with you to improve the clinical research process.  Last week in New Jersey, we welcomed the 40 newest PDF research advocates to this group.  All research advocates have completed a three-day training program, the Annual PDF Clinical Research Learning Institute, which has prepared them to advocate for the inclusion of people with Parkinson’s in therapy development.

 

Learn about PDF Research Advocates

Learn about the skills gained by research advocates at last week’s training to get a sense of how their knowledge might help your work.
Hear from an Advocate 
Read the Report 

 

Work with a Research Advocate

Partner with one of our research advocates. Maybe you have a spot on an advisory committee, or need feedback on study design. Contact PDF today to find out if there’s a research advocate in your state.
Contact Us 

 

Help us Spread the Word

You can help your patients to become research advocate, by pointing them toward PDF’s online tools. They can start by testing their Parkinson’s clinical research IQ, then learn the facts and use PDF’s tools to spread the word in their communities throughout the US. Forward this email and print the pages below to ensure this network of research advocates keeps growing.
Take our Quiz  
Learn to Become a Research Advocate 

 

About PDF Research Advocates

PDF research advocates work to bring educated consumer voices to important issues in Parkinson’s therapy development.   Research advocates develop their skills through annual three-day program, the PDF Clinical Research Learning Institute, and continue to grow their advocacy knowledge and connections through continuing education opportunities and tools provided by PDF.  The Learning Institute was launched in 2008, based on the premise that all too often, the perspectives of people with Parkinson's are excluded from the decision-making that advances new therapies.  It is building a growing network of research advocates who are actively collaborating with scientists, government agencies and private industry, to change the role that people Parkinson’s play in the design and implementation Parkinson’s research and programs.

Highlighted Item: An Advocate’s Report

Our newest advocate John wants your help in research advocacy.

Hear from John


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PDF's work in Parkinson's research, education and advocacy is made possible by your contributions. Make a donation today to support our mission. Thank you for your generosity.
 
If you have or believe you have Parkinson’s disease, then promptly consult a physician and follow your physician’s advice. This email is not a substitute for a physician’s diagnosis of Parkinson’s disease or for a physician’s prescription of drugs, treatment or operations for Parkinson’s.