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2012 Awareness Toolkit

Parkinson's Awareness Month Toolkit

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How you Raised Awareness: 2011 Survey Results

Parkinson's Awareness Month Tulip LogoIn April 2011, you and other members of the Parkinson’s community were incredibly active in spreading the word about Parkinson’s, what it means to you and your family, and why we need support from our communities — whether by visiting the Parkinson’s Quilt, writing a letter to the editor, or hanging up a poster. In order to assess our impact as a community and better support you, we asked you to fill out a short survey about your activities this year.

Here is some of what we learned:


How did you participate in Parkinson's Awareness Month?

2011 Parkinson's Awareness Month Survey Results

My activities helped raise awareness in my community:

2011 Parkinson's Awareness Month Survey Results


Here's what some of our awareness raisers did:

  • "I talked with several nurses that I work with in a local hospital about the symptoms of my PD and what I have been through in the last ten years."
  • "I changed my Facebook profile picture and posted Awareness Month information on my wall. A lot of my friends learned more about PD because I spread the word."
  • "Gave information handouts to doctor's offices and to members of my ladies' club."
  • "Asked friends to sign the Global PD Pledge."
  • "Set up an information table at my church."
  • "Supported in the Parkinson's Unity Walk in Central Park, NY."
  • "Many people in my community read my letter to the editor and commended me for writing it."
  • "I live in a retirement village. I rented one quilt for eight  days. I was supported 100 percent by management and residents."
  • "Spoke to a class of pharmacy students as a guest speaker, about what it is like to have Parkinson's disease."
  • "Spoke with a group of high school kids interested in medical careers about my experiences as a person with Parkinson’s and my deep brain stimulation surgery."
  • "We raised $2,291 for Rock Steady at Parkinson’s awareness night with the Pacers."
  • "Donated to PDF's Brilliant Challenge, helping to raise $200,000."
  • "I wore my Parkinson’s t-shirt whenever friends or relatives came over in April."