Display the Quilt
Display the Parkinson’s Quilt in your community to show the impact of PD on your community.
Who's Raising Awareness?
Read about some of the inspiring individuals who are making a difference all year round, particularly during April's Parkinson's Awareness Month. Please let us know what you're doing to raise awareness in your community by emailing email@example.com or by participating in our photo campaign. Select stories may be featured on the website.
Spread the Word
On April 24, Linda Morgan, a member of PDF's People with Parkinson's Advisory Council, hosted a screening of the film, "Just Around the Corner," a story of Light of Day Foundation founder Bob Benjamin and his battle against Parkinson’s disease, in Asheville, NC.
On April 21, the Hott Family, of Berkeley Springs, WV, participated in “Wearing Grey” day to raise awareness for Parkinson's disease. View Blog Story.
Becky Pruitt Jarnagin, of Elizabethton, TN, has tied PDF ribbons on trees around her community, for the entire month of April 2012.
Linda Giorgilli, of Tampa, FL, who chose to write a letter to the editor of her local paper. View Letter.
Linda Habenstreit, of Springfield, VA, has organized a display of the Parkinson's Quilt (Block #8) at the National Institutes of Health (National Institute of Neurological Disorders & Stroke) lobby in Bethesda, MD, for the entire month of April 2012.
In late March 2012, Patti Meese secured an early proclamation, declaring April as Parkinson's Awareness Month, from Mayor Jim Lane in Scottsdale, AZ. Thanks Patti and Mayor Lane!
“The City of Elizabethton, TN, declared April Parkinson's Awareness Month. Here is a picture of my mom, Charlotte Pruitt, holding the proclamation and other awareness items I put in a frame.”
–Becky Pruitt Jarnagin, 2011
“April Awareness Month Proclamation — City of Tampa 2011: Love to my dad and everyone else fighting this disease, and all your loved ones and supporters. We will win. We will get that cure.”
–Linda Giorgilli, 2011
PDF Research Advocates Patti Meese, of Scottsdale, AZ, and Jim Patterson, of Dunedin, FL, both found success when they lobbied their hometowns for Parkinson's Awareness Month proclamations in 2011.
In April 2011, 20 individuals, including Ruth Pearce of Gainesville, GA, displayed the Parkinson’s Quilt in 11 states. An estimated 2,500 people came to view it!
Rénee Gerrior shared this photo on PDF's Facebook page. She and members of her family are all sporting the 2011 Parkinson's Awareness Month T-Shirt, "It May Shake Me, But It Can't Break Me.”
Educate Yourself and Others
Several of PDF’s Research Advocates have been holding “PAIR Up for Parkinson’s Research” educational forums, which discuss local Parkinson’s research studies, how you can get involved and serve to thank those who have participated in studies. Find one in your community.
Bev Ribaudo of Yuma, AZ, asked her library if she could create a Parkinson's Awareness Display table for April 2012. They went one step further, agreeing to a display at each branch in the county! Bev included free materials from PDF and others she found helpful to educate visitors about PD.
PDF Research Advocate Lori Katz with Cherry Hill, NJ Township Councilperson Jacquelene Silver at the Cherry Hill Public Library, with a Proclamation for Parkinson's Awareness Month 2012. Lori and her husband Sid held an educational event and set up a display with educational materials at the library for the month of April 2012 (see table at right).
In 2011, PDF Research Advocate Gordie Guist, of Camden, ME, set up a display of educational materials and books about Parkinson’s in his local library.
In April 2011, John Baumann of, Louisville, KY, and Linda Hinkle and Mary Yeaman of Indianapolis, IN, partnered with the NBA’s Indiana Pacers to hold an awareness event. Centered around a game, it included educational handouts and a reading of a proclamation at half time.
The same team of PDF Research Advocates — John Baumann, Mary Yeaman and Linda Hinkle (see page 18) — staffed a PDF informational table the Sixth Annual Frances E. Lang Living Well Symposium in Louisville, KY, held by the Parkinson Support Center of Kentuckiana.
In 2012, PDF Creativity Artist John Fasulo of Beacon, NY, combined awareness, fundraising and creativity. His nearby library, Butterfield Memorial Library, held an exhibit of his works, “Railroad and Other Images.” Ten percent of all sales of his prints supported PDF’s programs!
Support the Cure
Michael Hornung, organized “Aqua-Thon Splash for a Cause” in Brooklyn, NY, on April 21st to raise awareness for Parkinson's Disease.
Are you coming to the Parkinson’s Unity Walk on Saturday, April 28 in New York, NY? Join the PDF Pacers team and be sure to stop by the PDF booth for educational materials and awareness gear!
How can you support the cure? Consider becoming a partner in “Tulips Bloom for Parkinson’s.” See how Gristedes Supermarkets are partnering with us in the New York area. View Poster.
In honor of Parkinson's Awareness Month 2012, jewelry-maker Emily Alice is donating 15 percent of sales from her "Dopamine Collection," available on www.emily-alice.com to PDF. Her homemade designs are inspired by science and in particular molecules.
PDF Champions Ambassador and WNBA Star Ivory Latta and her father, who lives with Parkinson's, hosted a Celebrity Bowl-a-thon for Parkinson's in Atlanta, GA, on March 29, 2012. They welcomed nearly 200 guests to raise awareness and funds and kick off Parkinson's Awareness Month 2012. View Video
In April 2011, Barbara Hebert, a nursing home administrator and person living with Parkinson’s, brought the first Parkinson’s walk to Ocala, FL, and raised nearly $3,000.
In 2011, The Mid-Hudson Parkinson’s Support Group held a three-mile walk in Poughkeepsie, NY, with 200 participants, raising more than $6,000.”
“My father and my grandmother live with Parkinson’s, which drives me to help other families touched by the disease.”
–Ivory Latta, PDF Champions Ambassador