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PD Awareness Toolkit

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Who's Raising Awareness?

Read about some of the inspiring individuals who are making a difference all year round, particularly during April's Parkinson's Awareness Month. Please let us know what you're doing to raise awareness in your community by emailing info@pdf.org or by participating in our photo campaign. Select stories may be featured on the website.

 

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Mary Jo Baldino, B.S., R.N., showcased a block of the Parkinson's Quilt at a PD Workshop led by the Greater Chester County Chapter National Geriatric Nurses Association on April 5, 2014 in Coatesville, PA.

 

In April 2014, PDF Research Advocate Jane Gaydos of Cleveland, OH, and members of her Pedaling for Parkinson’s group showed their support by wearing the official 2014 Parkinson’s Awareness T-Shirt.

 

In April 2014, PDF Research Advocate Greg Hardoby shared PDF’s free awareness posters and educational resources around town, including at his local library in Rahway, NJ.

 

 

On April 24, 2012 Linda Morgan, a member of PDF's People with Parkinson's Advisory Council, hosted a screening of the film, "Just Around the Corner," a story of Light of Day Foundation founder Bob Benjamin and his battle against Parkinson’s disease, in Asheville, NC.


On April 21, 2012 the Hott Family, of Berkeley Springs, WV, participated in “Wearing Grey” day to raise awareness for Parkinson's disease. View Blog Story.



Becky Pruitt Jarnagin, of Elizabethton, TN, has tied PDF ribbons on trees around her community, for the entire month of April 2012.



Linda Giorgilli Rice, of Tampa, FL, wrote a letter to the editor of her local paper in April 2014. 




Linda Habenstreit, of Springfield, VA, organized a display of the Parkinson's Quilt (Block #8) at the National Institutes of Health (National Institute of Neurological Disorders & Stroke) lobby in Bethesda, MD, for the entire month of April 2012.

In late March 2012, Patti Meese secured an early proclamation, declaring April as Parkinson's Awareness Month, from Mayor Jim Lane in Scottsdale, AZ. Thanks Patti and Mayor Lane!


Becky Pruitt Jarnagin“The City of Elizabethton, TN, declared April Parkinson's Awareness Month. Here is a picture of my mom, Charlotte Pruitt, holding the proclamation and other awareness items I put in a frame.”
–Becky Pruitt Jarnagin, 2011

Linda Giorgilli“April Awareness Month Proclamation — City of Tampa 2011: Love to my dad and everyone else fighting this disease, and all your loved ones and supporters. We will win. We will get that cure.”
–Linda Giorgilli, 2011

PDF Research Advocates Patti Meese, of Scottsdale, AZ, and Jim Patterson, of Dunedin, FL, both found success when they lobbied their hometowns for Parkinson's Awareness Month proclamations in 2011.


Ruth PearceIn April 2011, 20 individuals, including Ruth Pearce of Gainesville, GA, displayed the Parkinson’s Quilt in 11 states. An estimated 2,500 people came to view it!



Renee GerriorRénee Gerrior shared this photo on PDF's Facebook page. She and members of her family are all sporting the 2011 Parkinson's Awareness Month T-Shirt, "It May Shake Me, But It Can't Break Me.”

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Learn

PDF Research Advocates John Creveling and Chris Robertson hosted a Parkinson’s table with free PDF educational materials in April 2014 at the South Philadelphia Senior Health Fair in Philadelphia, PA.

 

 

On April 12, 2014, PDF Research Advocates Susan Gerbeth-Jones, Jim Simons, Lisa Cox and Linda Morgan, M.B.A., R.Ph., teamed up with researchers at the University of North Carolina to talk about ways to improve local Parkinson's clinical trials.

 

 

In April 2014, PDF Research Advocates Meg Hoffmann and Richard Hoffmann, Pharm.D., created an awareness display at the Citrus County Library Lakes Region, in Inverness, FL.

 

 

Maria De Leon, M.D., a PD specialist and a person living with PD, did a “show and tell” in 2014 at Stephen F. Austin Medical School in Nacogdoches, TX. She educated health professionals and nursing students about Parkinson’s.

 

 

Several of PDF’s Research Advocates have been holding  “PAIR Up for Parkinson’s Research” educational forums, which discuss local Parkinson’s research studies, how you can get involved and serve to thank those who have participated in studies.  Find one in your community.

Bev Ribaudo of Yuma, AZ, asked her library if she could create a Parkinson's Awareness Display table for April 2012. They went one step further, agreeing to a display at each branch in the county! Bev included free materials from PDF and others she found helpful to educate visitors about PD.

PDF Research Advocate Lori Katz with Cherry Hill, NJ Township Councilperson Jacquelene Silver at the Cherry Hill Public Library, with a Proclamation for Parkinson's Awareness Month 2012. Lori and her husband Sid held an educational event and set up a display with educational materials at the library for the month of April 2012. 

In 2011, PDF Research Advocate Gordie Guist, of Camden, ME, set up a display of educational materials and books about Parkinson’s in his local library.



John BaumannIn April 2011, John Baumann of, Louisville, KY, and Linda Hinkle and Mary Yeaman of Indianapolis, IN, partnered with the NBA’s Indiana Pacers to hold an awareness event. Centered around a game, it included educational handouts and a reading of a proclamation at half time.

The same team of PDF Research Advocates — John Baumann, Mary Yeaman and Linda Hinkle — staffed a PDF informational table the Sixth Annual Frances E. Lang Living Well Symposium in Louisville, KY, held by the Parkinson Support Center of Kentuckiana.

John FasuloIn 2012, PDF Creativity Artist John Fasulo of Beacon, NY, combined awareness, fundraising and creativity. His nearby library, Butterfield Memorial Library, held an exhibit of his works, “Railroad and Other Images.” Ten percent of all sales of his prints supported PDF’s programs!

Browse Tips for Educating Yourself and Others

 

Support

The Mid-Hudson Parkinson’s Support Group held its fourth annual Walk Over Water in April 2014 in Poughkeepsie, NY. The group has raised more than $55,000 for PDF. NY State Senator Terry Gipson attended and proclaimed April Parkinson's Awareness Month.

 

Lisa Paillex Griffin teamed up with her friends at Empanada Guy Restaurant in Freehold, NJ, to sell Empanadas for Parkinson's in April 2014.

 

 

 

Join the PDF Pacers team at the Parkinson's Unity Walk held each April in New York, NY. Be sure to stop by PDF's booth for educational materials and awareness gear!

 


For the third year in a row, PDF Champion Emily Alice is donating 25 percent of sales from her Dopamine and Oxytocin jewelery collections to PDF during April, Parkinson's Awareness Month. Her homemade designs are inspired by science and in particular molecules. Visit her website to shop these collections supporting PDF.



How can you support the cure? Consider becoming a partner in “Tulips Bloom for Parkinson’s.” See how Gristedes Supermarkets are partnering with us in the New York area. View Poster.

 

Michael Hornung, organized “Aqua-Thon Splash for a Cause” in Brooklyn, NY, on April 21, 2012 to raise awareness for Parkinson's disease.

 

PDF Champions Ambassador and WNBA Star Ivory Latta and her father, who lives with Parkinson's, hosted a Celebrity Bowl-a-thon for Parkinson's in Atlanta, GA, on March 29, 2012. They welcomed nearly 200 guests to raise awareness and funds and kick off Parkinson's Awareness Month 2012. View Video

In April 2011, Barbara Hebert, a nursing home administrator and person living with Parkinson’s, brought the first Parkinson’s walk to Ocala, FL, and raised nearly $3,000.


Ivory Latta“My father and my grandmother live with Parkinson’s, which drives me to help other families touched by the disease.”
–Ivory Latta, PDF Champions Ambassador

Browse Tips for Supporting the Cure

 

Next: 2011 Survey Results