“As a doctor and researcher, I have seen first-hand how the PAIR program can empower people with Parkinson’s and care partners. I believe that when we partner with these informed Research Advocates, that is when we will see true change in Parkinson’s research.”
- Joohi Jimenez-Shahed, M.D., Baylor College of Medicine, PAIR faculty, Houston, TX
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Help Change Research
Do you know patients who are eager to help bring about better treatments for Parkinson’s at a faster pace? If so, nominate them for a spot at the Parkinson’s Advocates in Research (PAIR) Learning Institute, taking place in March 2014.
Parkinson’s Advocates in Research Learning Institute
What: At this three-day training, participants will learn from experts in the field about the science of Parkinson’s and the process that brings new treatments to market. They will gain leadership and advocacy skills to interact with the scientific community. At the close of training, participants take on the role of PDF Research Advocate and join a national network of 200+ volunteers from 42 states who are actively changing research.
When: Thursday, March 6 through Saturday, March 8, 2014.
Where: Wyndham Hamilton Park Hotel & Conference Center, Florham Park, NJ
Who: Hosted by the Parkinson’s Disease Foundation. For those who are selected, all expenses (registration, travel, hotel accommodation, meals, etc.) will be covered by PDF.
Who to Nominate: PDF will accept applications from people who live with Parkinson’s and from teams of people with Parkinson’s and care partners. We are seeking applicants who are knowledgeable about Parkinson’s and who have expressed interest in research (for example, by participating in clinical trials). Applicants should be willing to spend at least five hours a month on advocacy work, whether educating local support groups about research, serving on community hospital institutional review boards, or even serving on patient committees at national institutions such as the FDA and NIH.
Why: Despite promising research, there is neither a cure for PD nor are there medications that can reverse its course. But there can be. To get there, people with Parkinson’s must be primary partners in research alongside scientists, industry and government. As a signature program of PDF, Parkinson’s Advocates in Research is making this partnership a reality.
How: Email us at firstname.lastname@example.org to let us know if you know a promising candidate. We will contact you to set up a phone call to discuss the program. Enrollment is limited. Advocates must live in the United States.
Learn More and Apply
Email us with a Nomination
Robin Anthony Elliott
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If you have or believe you have Parkinson’s disease, then promptly consult a physician and follow your physician’s advice. This email is not a substitute for a physician’s diagnosis of Parkinson’s disease or for a physician’s prescription of drugs, treatment or operations for Parkinson’s.