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Press Releases

Parkinsonís Disease Foundation Responds to the US Supreme Court Decision Upholding the Affordable Care Act

Responding to today’s Supreme Court decision upholding most portions of the 2010 Patient Protection and Affordable Care Act, PDF’s Executive Director Robin Elliott noted: “The Act has survived a major test with today’s decision of the United States (US) Supreme Court.  Now comes the greater test: assuring that the Act, when implemented, assures that affordable health care of the highest quality is available to all who need it.”

As a non-partisan organization that advances research on Parkinson’s disease and advocates for in behalf of the people who live with it, PDF supports bipartisan and comprehensive legislation that is in line with a list of 13 Principles for Health Care Reform (see below) that was developed in 2009 under the guidance of PDF’s People with Parkinson’s Advisory Council.  Since the development of these principles three years ago, PDF has supported specific provisions that the organization considers vital to the Parkinson’s community.  These include a guarantee for health care coverage for all regardless of pre-existing conditions; the elimination of lifetime and annual limits; the inclusion of essential health benefits; and the closing of the so-called “doughnut hole” in Medicare.

Mr. Elliott said that his organization will be working closely with the Parkinson’s Action Network, the Washington-based public policy arm of the Parkinson’s community, to ensure effective and expeditious implementation of the Act.
For more specific questions about your life with Parkinson’s, please call PDF’s National HelpLine at (800) 457-6676.

Principles of Health Care Reform

(As of September 2009)

In order to meet the health care needs of people who live with Parkinson’s disease and their families, the Parkinson’s Disease Foundation takes the position that an acceptable national plan for health care reform should meet the following criteria:

  • Assuring accessible and affordable coverage for all essential health services, recognizing the special needs of people who live with long-term neurodegenerative conditions such as Parkinson’s disease. 
  • Assuring that no one will be denied coverage or charged a higher premium because of a pre-existing condition, including a diagnosis of Parkinson’s disease.
  • Assuring that out-of-pocket costs to the person with Parkinson’s – including deductibles, co-payments, co-insurance and the expense produced by annual or lifetime caps – are kept affordable.
  • Preserving an acceptable level of choice for all patients in health care provider relationships and among all health insurance plans, whether public or private.
  • Eliminating the current 24-month disability waiting period for Medicare coverage.
  • Improving drug benefits provided through insurance programs, both public and private   – including removal of the “doughnut hole” in Medicare.
  • Assuring services and support for people with cognitive and mental health issues that may be due to Parkinson’s disease or to the medicines that are used to treat it.
  • Improving coverage for long-term care and services, including nursing-home, in-home and community services.
  • Providing coverage for accessible and necessary medical equipment – including walkers and other assistive devices that are needed by people with Parkinson’s.
  • Improving the coordination of medical care for people with Parkinson’s and other conditions that often require the services of multiple health care providers.
  • Assuring a commitment to reducing the disparities in access to health care that currently exist in such categories as income, geography and racial/ethnic/linguistic identity.
  • Providing financial and other incentives to improve the level of education and training in Parkinson’s disease and other degenerative conditions among health care providers, including physicians, nurses and allied health professionals.
  • Exploiting the potential of new communications technologies – such as electronic medical records and telemedicine – in the provision of medical and other health care services.

These Principles are also available in .pdf format:

Download the Principles for Health Care Reform

Source Date: Jun 28 2012