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South Carolina Residents Recognizing Parkinsonís Awareness Month with Educational Conference

Myrtle Beach, SC, residents, and mother and son team, Bernie Snead and Jackie Snead are creating a forum for the community to mark Parkinson’s Awareness Month this April. Working with the Parkinson’s Disease Foundation (PDF) and the Medical University of South Carolina, they are hosting a “PAIR Up for Parkinson’s Research” Conference on Thursday, April 19, at the Crown Reef Resort from 9:00 AM to 4:00 PM.

“PAIR Up for Parkinson’s Research” is one in a series of educational forums being held throughout the country in April. They are designed to educate the community about Parkinson’s research and to thank individuals who have participated in clinical studies. The forums are being organized by this mother and son team and their 155 colleagues who are part of PDF’s Parkinson’s Advocates in Research (PAIR) – all of whom work to speed new treatments for Parkinson’s.

Bernie was diagnosed with Parkinson’s in 2010 at the age of 50, although he struggled with his symptoms for several years before receiving a diagnosis. He and his mother have been actively educating the public about science and the benefits of clinical trial participation ever since.

Their Parkinson’s Conference on Thursday, April 19, will include educational presentations by movement disorder specialists from the Medical University of South Carolina on topics such as deep brain stimulation, the impact of exercise and clinical trials. The specialists will also be available to answer questions. Myrtle Beach Mayor John Rhodes will sign a proclamation declaring April as Parkinson’s Awareness Month. The event will also honor people who have taken part in clinical trials to advance treatment of Parkinson’s by presenting them with tulip pins, the official flower of Parkinson’s. Admission to attend is free.

Ms. Snead remarks on their motivation for organizing the conference, “The same type of medication is being given today that was given 40 years ago. The advancements made in Parkinson's treatments for a cure or slowing of the disease have not been changed a great deal. This is something that needs to change.”

Robin Elliott, Executive Director of PDF, said “At PDF, we are inspired by creative and dedicated individuals like Ms. Snead and her son who are finding ways to make a difference.  As Research Advocates, they are key partners in PDF’s mission to support the research and ideas that will improve the lives and futures of people touched by Parkinson’s.”

Those interested in learning more about “PAIR Up for Parkinson’s Research” or ordering free educational materials such as PDF's toolkit, 30 Ways to Raise Awareness of Parkinson's, may contact the Parkinson’s Disease Foundation by calling (800) 457-6676 or emailing info@pdf.org.

About Parkinson’s Disease

Parkinson’s disease is a progressive neurological disorder that affects nearly one million people in the US.  Although promising research is being conducted, there is currently no cure for Parkinson’s.

About the Parkinson’s Disease Foundation

The Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research while supporting people living with Parkinson’s through educational programs and services. Since its founding in 1957, PDF has dedicated over $90 million to fund the work of leading scientists throughout the world and over $37 million to support national education and advocacy programs.

About Parkinson's Advocates in Research (PAIR)

Parkinson's Advocates in Research is a growing network of 156 Research Advocates from 36 states who influence research and speed the development of new treatments for Parkinson's disease.  PDF Research Advocates are actively collaborating with research professionals, government agencies and private industry to ensure the unique perspectives of people touched by Parkinson's disease are included in research decisions and implementation.  PDF Research Advocates are key partners in PDF's mission to support the research and ideas that will improve the lives and futures of people touched by Parkinson's disease.

 

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Source Date: Apr 12 2012