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Press Releases

PDF Research Advocate Joins Forces with California Parkinsonís Disease Registry

New York, NY—Orange County resident Jim Wong, Ph.D., has been appointed as community advocate to the California Parkinson’s Disease Registry, an initiative created to facilitate data collection to accelerate new therapies and a cure for Parkinson’s.  Dr. Wong was chosen based upon his professional and volunteer background as a scientist and a trained research advocate with the Parkinson’s Disease Foundation (PDF).  

Dr. Wong has been active in the Parkinson’s cause for many years. As a research advocate with PDF, he and 100 others around the United States have undergone training to develop the leadership and advocacy skills to influence Parkinson’s research decision-making and speed the development of much-needed therapies.  He and his colleagues work under the umbrella of PDF’s Parkinson’s Advocates in Research (PAIR) program.

In his role with the registry, he will utilize his experiences as a cell biologist and his training as a research advocate to advise its implementation and reach out to health care professionals and people with Parkinson’s. The California Parkinson’s  Disease Registry collects data that can answer questions such as: Who gets Parkinson’s? What are the causes?

He believes that as a person with Parkinson’s, he can offer the registry a perspective it needs to be truly effective. As he says, “The five Southern California counties alone are home to half of the state's population. If, as a research advocate, I can help the registry to identify the people with Parkinson’s living in this area, we are making a huge difference in understanding the disease. I’m grateful to PDF for providing me with the training and resources to become a research advocate within my community and state.”

Robin Elliott, Executive Director of PDF, said, “PDF believes that engaging people living with Parkinson’s in research decision-making is a vital means to improving the design, conduct and outcomes of research.  We applaud Dr. Wong for using his training to contribute to such an important initiative as this registry in California.  His appointment is an example of the goal of the PAIR program to integrate the urgency that people with Parkinson’s have – for finding new therapies and a cure for Parkinson’s as soon as possible – into all research programs.”

For more information about Dr. Wong’s work, please contact PDF at (800) 457-6676 or info@pdf.org.

To learn more about the California Parkinson’s Disease Registry, visit www.capdregistry.org.

About Parkinson’s Disease
Parkinson’s disease is a progressive neurological disorder that affects nearly one million people in the US.  Although promising research is being conducted, there is currently no cure for Parkinson’s.

About the Parkinson’s Advocates in Research Program
Parkinson's Advocates in Research (PAIR) is a growing network 100 research advocates living with Parkinson's from 36 states who are dedicated to bringing educated community voices to important issues in Parkinson’s research.  Research advocates are actively collaborating with research professionals, government agencies and private industry to strengthen the role that people with Parkinson’s play in the design and implementation of Parkinson’s research and programs – to ultimately speed the development of therapies from “bench to bedside.”

About the Parkinson’s Disease Foundation
The Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research while supporting people living with Parkinson’s through educational programs and services. Since its founding in 1957, PDF has dedicated over $90 million to fund the work of leading scientists throughout the world and over $37 million to support national education and advocacy programs.

Source Date: Oct 04 2011