Do you want to know more about Parkinson's? PDF's materials provide information about symptoms, medications, resources & more.
PDF in the News
Hernando Couple Calls on Families to Help Find Parkinsonís Cure
- Nov 13 2013
Hernando residents Richard Hoffmann, Pharm. D., and his wife, Meg, are asking care partners to join them in helping to find the cure for Parkinson’s disease.
The Hoffmanns are also Parkinson’s Disease Foundation (PDF) Research Advocates, and say this message is particularly important during November’s National Family Caregivers Month.
Dr. Hoffmann, a pharmacist, took on the role of care partner to his wife Meg after she was diagnosed with young onset Parkinson's in 2008. The couple wanted to make a difference, so together they joined PDF's Parkinson's Advocates in Research program.
The program helped Dr. Hoffmann to secure a role as an advisor to the US Food and Drug Administration. In this role, he helps to evaluate new drugs for Parkinson's and other neurological diseases.
The couple is also changing research by volunteering for clinical trials. They note that trials need not only people with Parkinson's disease, but also healthy controls, in order to test new treatments.
“When our loved ones are first diagnosed, we as care partners may feel helpless, as if there is nothing we can do to fight Parkinson’s disease,” says Dr. Hoffmann.
“But we have an intimate understanding of Parkinson’s disease and a sense of urgency that few others can offer. I encourage my fellow care partners to realize that they too can help change the future for our loved ones.”
As PDF Research Advocates, the couple also educates their community on Parkinson’s research presenting at support group meetings and creating informational library displays.
“I look upon Parkinson’s as our disease, not just my disease. What affects me, does affect him,” says Mrs. Hoffmann. “If you’re serious about finding a cure, you have to get involved. Together we stress that there are so many different ways and opportunities to participate in research.”
For more information on how the Hoffmann family is changing Parkinson’s research and how other care partner teams can join them, visit www.pdf.org/pair or contact PDF at (800) 457-6676 or send an e-mail to: email@example.com.
About Parkinson's Disease
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the US. Although promising research is being conducted, there is currently no cure for Parkinson's.
About PDF's Programs for Care Partners
As the population of the US ages, the incidence of Parkinson's disease is expected to increase. This will affect the number of people needed to care for people living with Parkinson's disease. To support this growing population, PDF offers programming and services for care partners, including a toll-free HelpLine available at (800) 457-6676, an online seminar held annually during National Family Caregivers Month and print resources geared toward care partner needs. To learn more, visit www.pdf.org/caregivers_month.
Source Date: Nov 13 2013
Source Publication: Citrus Daily
View source URL