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Participant Information

Vojko Grosar

City:
Ljubljana
State:
Country:
Slovenia
Essay:

Branko Smid, Trepetlika Association President on Vojko Grosar:

I met Vojko Grosar at the time, when we revived the activity of our association TREPETLIKA again. We solved many of the set tasks and we enabled to the people with the extrapyramide disturbances in Primorska the contact with life -- if not something other, but at least a warm word, opinion exchange, a trip through our beautiful country or a meeting.

As a leader of the section and an active member of the Association, Vojko is always prepared for cooperation and fight for the improvement of life quality of our members.
Vojko Grosar is a man by whom Parkinson disease changed his feeling and look on life. A professor of physical education has become a poet. During his most creative period, when a man has got so much working energy and desires...a chronic disease completely changes your life. Parkinson disease, with its motor changes (now you're good, movable -- switched on... but after some moments completely motionless -- switched off) makes many of the patients desperate and depressed, but besides this it has got strong influence on the family relations.

But some of us are different and Vojko is different. Right away, the optimism is one of these matters, which you can feel at meeting with him and his poems:

WHO AM I, DETERMINATION AND COOLNESS, PAIN AND POWER, PRESCRIPTION, NEW HOPE, HYMN...

Greatest and maybe the only wish of each patient with a chronic disease is to recover. I think that this is also Vojko's greatest wish. These wishes will be realizable one day, if we already today plan the cooperation between the patients and professionals hand in hand.

Dr. Zvezdan Pirtosek, on Vojko Grosar:

Parkinson's disease has got ten, hundred, thousand faces, once Mrs. Benko, the first secretary of The Treplika Association, told me. And each face has got ten, hundred, thousand expressions.

Vojko Grosar describes them refinely in his poems and he apparently presents the heavy disease burden to a reader: "How to move an arm now?"

"A strange fear buries itself into my body..."

"A terrible ring presses body..."

And however, this burden is apparent.
Vojko's words, in some places simple and hard, are soon mixed with different tones, in the rhythms of love, humor, eroticism and even philosophy.

Of that philosophy, which is in some moments somehow orientally veiled and which I rarely meet in [meditating and examining ones] patients with chronic neurodegenerative disease.

His rhymes are the invitation to different world for a healthy one; it can be an unusual comfort for the patient; but he describes with a poet's language the clinical picture and the sciences yet still unexplainable pathophysiological mechanisms to a doctor. Like the words, he describes so masterly that splitting with, which a patient with Parkinsonism feels between the phenomenon of the wanted and automatic, between his to the sky aching will and leaden weight of motionless body:

"As if a body is in one cage and a soul in another one and both cages in the third cage."

Besides all the diversity which Vojko's poems offer to the healthy ones (and who is merely completely healthy?) and to the patients (and which patient doesn't merely have sometimes more hope and wealth than that healthy one), he lays down a precious thought to all of us into a cradle of our cognitions, hopes and comforts:

"I am changing pain into power..."