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PDF Creates Parkinson's Advisory Council
The Parkinson's Disease Foundation (PDF) is pleased to announce the formation of our new People with Parkinson's Advisory Council (PPAC) and present the names of its 14 inaugural members.
PDF launched PPAC in summer 2006 to provide our various programs with the perspective of people with Parkinson's that is so essential to our program development and priority setting.
"Historically, PDF has been committed to ensuring that the voice of those directly affected by Parkinson's disease be heard," said Robin Elliott, Executive Director of PDF. "We are continuing this tradition by creating a formal place at the table for people with Parkinson's and their caregivers. This will ensure that their perspective, insight and experience are firmly embedded into how we think, how we work and how we plan for the future in all areas of our mission - be it research, education or advocacy."
This past spring PDF invited nominations in search of individuals who demonstrate leadership within the Parkinson's community and possess the interests, skills and commitment necessary to serve as a national representative for people with Parkinson's disease. The depth and breadth of experience, skills and recognition among the individuals who expressed a desire to join the PPAC made for keen competition and difficult decision-making among members of the review and selection committee.
Of the 14 PPAC members who were selected, 11 are people with Parkinson's disease and three are caregivers. These accomplished individuals come from diverse geographic regions and varied professional backgrounds that include research, medicine, law, technology and writing. Please join us in congratulating and welcoming the individuals listed in the box as they begin their PPAC tenure!
PPAC members will serve on the Council for two years. Their efforts will provide PDF with perspectives on research-funding priorities and ways that we can better serve people living with Parkinson's through our information and education programs. PPAC members will also represent PDF within the local PD community and attend relevant conferences and meetings.
The PDF board and staff are extremely excited about the potential of the People with Parkinson's Advisory Council for improving our work in research, education and advocacy and to strengthen our connection to the PD community. Look for updates on the work of the PPAC in future issues of our newsletter!
Inaugural Members of the People with Parkinson's Advisory Council