It is so important for us all to take a moment to submit ... to voice our priorities and help change Parkinson's research. Now is our time to speak up.
Member, PDF People with Parkinson's Advisory Council
& Advisor, ProjectSpark
Community Choice Research Award
Who Has the Next Big Idea for PD Research? You Do!
Which question about PD is most important for scientists to study? Share your priorities and we will fund scientists to study two community-chosen research questions.
PDF is asking for your help as we open our Second Annual Community Choice Research Awards. Last year, PDF opened the first awards and selected two community priorities — fatigue and gastrointestinal dysfunction — to be studied with $15,000 grants.
Now, it is time again for people with PD and care partners to make their voices heard. Vote by Thursday, April 30 and spread the word to people with Parkinson's disease and care partners that you know today.
About the Award
The PDF Community Choice Award supports research ideas that come from people who live with Parkinson’s disease.
In 2014, after PDF's first Community Choice Research Award poll, we announced $30,000 in funding to address two disabling, yet under-recognized symptoms of Parkinson’s – fatigue and gastrointestinal dysfunction. The patient community identified these two areas as priorities for scientific research through our online survey, the results of which were reviewed by PDF’s scientific advisory board.
PDF then gathered leaders in the field of Parkinson’s disease as well as specialists from related areas to assess where we are in understanding and treating these symptoms, and what needs to be done to move the field forward.
- The first, focused on fatigue, was led by Joseph Friedman, M.D., professor of neurology in the Alpert Medical School at Brown University in Providence, RI.
- The second on gastrointestinal function was jointly led by Ronald Pfeiffer, M.D., professor and Vice Chair of the Department of Neurology at the University of Tennessee Health Science Center in Memphis, TN, and Eamonn Quigley, M.D., a gastroenterologist and Medical Director of The Lynda K. and David M. Underwood Center for Digestive Disorders at Houston Methodist Hospital in Houston, TX.
Each meeting also involved people with Parkinson's who first recommended each topic and PDF Research Advocates. Be sure to read Anne's story of why she first submitted fatigue as a research priority on behalf of her husband Jim.
- What questions trended in the first Community Choice Research Award online survey? View results here.
- How did we choose the PDF Community Choice Research Award? Browse the Frequently Asked Questions here.
PDF thanks its People with Parkinson's Advisory Council and the ProjectSpark Foundation for their support and partnership on this initiative.