It is so important for us all to take a moment to submit ... to voice our priorities and help change Parkinson's research. Now is our time to speak up.
Member, PDF People with Parkinson's Advisory Council
& Advisor, ProjectSpark
Community Choice Research Award
Who Has the Next Big Idea for PD Research? You Do!
Each year, through its Community Choice Research Award, the Parkinson's Disease Foundation (PDF) asks people living with the disease and care partners to share their priorities for research. Our scientific advisory board studies all responses to better understand which issues are most important to the community. We also select two community-chosen priorities and fund scientists with $15,000 to investigate them.
In 2014, after the first Community Choice Research Award survey, PDF announced $30,000 in funding to address two disabling, yet under-recognized symptoms of Parkinson’s – fatigue and gastrointestinal dysfunction - identified by the patient community through the online survey.
PDF then gathered leaders in the field of Parkinson’s disease as well as specialists from related areas to assess where we are in understanding and treating these symptoms, and what needs to be done to move the field forward.
- The first, focused on fatigue, was led by Joseph Friedman, M.D., professor of neurology in the Alpert Medical School at Brown University in Providence, RI.
- The second on gastrointestinal function was jointly led by Ronald Pfeiffer, M.D., professor and Vice Chair of the Department of Neurology at the University of Tennessee Health Science Center in Memphis, TN, and Eamonn Quigley, M.D., a gastroenterologist and Medical Director of The Lynda K. and David M. Underwood Center for Digestive Disorders at Houston Methodist Hospital in Houston, TX.
Each meeting involved people with Parkinson's disease, both those who recommended each topic and several PDF Research Advocates.
Stay tuned for updates on reseach into our 2014 priority areas, fatigue and gastrointestinal function, and for selections for 2015. Also be sure to read Anne's story of why she first submitted fatigue as a research priority on behalf of her husband Jim.
- What questions trended in the first Community Choice Research Award online survey? View results here.
- How did we choose the PDF Community Choice Research Award? Browse the Frequently Asked Questions here.
PDF thanks its People with Parkinson's Advisory Council and the ProjectSpark Foundation for their support and partnership on this initiative.