Parkinson's Information Service (PINS)
- Do you have questions about your medications?
- Do you need help finding a physician or support group?
Question of the Week
Q:Can you please explain the stages of Parkinson's disease? I need to know what to expect as the dise…
National Organizations
There are six national Parkinson’s organizations in the US that offer a variety of services, information and research agendas.
Parkinson's Disease Foundation
Website: www.pdf.org
Phone: (800) 457-6675
Email: info@pdf.org
PDF is a leading national presence in Parkinson's disease research, education and public advocacy. We are working for the nearly one million people in the US living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services. Through our Parkinson's Information Service (PINS), PDF offers:
- A support service run by Parkinson’s information specialists to answer any question about Parkinson's - through a toll-free helpline, (800) 457-6676, and web service, "Ask the Expert".
- Free educational materials (print, video and webcast) on Parkinson's disease.
- A monthly email blast with the latest scientific and community news.
American Parkinson Disease Association, Inc.
Website: www.apdaparkinson.org
Phone: (800) 223-2732
Email: apda@apdaparkinson.org
The mission of the American Parkinson Disease Foundation (APDA) is to "Ease the Burden and Find the Cure" for Parkinson's disease. APDA works to achieve this through research, support and education through regional chapters and Information and Referral Centers.
The Michael J. Fox Foundation for Parkinson's Research
Website: www.michaeljfox.org
Phone: (800) 708-7644
The Michael J. Fox Foundation for Parkinson's Research works to find a cure for Parkinson's disease by providing grants to help guarantee that new and innovative research avenues are thoroughly funded and explored.
National Parkinson Foundation
Website: www.parkinson.org
Phone: (800) 327-4545
Email: mailbox@parkinson.org
The National Parkinson Foundation (NPF) funds scientific research and provides information, support and education for patients, their families and healthcare professionals. NPF's website offers a chat room for people with young-onset Parkinson's, discussion forum for caregivers and an open forum on PD. NPF also provides resources for finding or starting a support group.
Parkinson's Action Network (PAN)
Website: www.parkinsonsaction.org
Phone: (800) 850-4726
Email: info@parkinsonsaction.org
The Parkinson's Action Network (PAN) is the unified advocacy voice of the Parkinson's community. Call PAN or visit their website to find out what's happening in Congress and the executive branch on current legislation impacting the PD community. Access the grassroots advocacy network including PAN's state coordinators, members of Congress and local media by zip code.
The Parkinson Alliance
Website: www.parkinsonalliance.org
Phone: (800) 579-8440
Email: info@parkinsonalliance.org
The Parkinson Alliance raises funds to support scientific research programs of other PD organizations through local events, including the Parkinson's Unity Walk in New York City.









