PDF is proud to collaborate with more than 130 individuals from 34 states who are part of the the Parkinson's Advocates in Research program. PDF Research Advocates are working around the country to influence research and speed the development of new and effective treatments for Parkinson’s.
Among their activities, they are:
Serving on Parkinson’s national, regional and local research advisory boards;
Working with the research community to address gaps in Parkinson’s research;
Speaking at conferences and support groups on the importance of clinical study participation.
All PDF Research Advocates have completed one of PDF's three-day Learning Institutes, during which they complete rigorous sessions on the science of Parkinson’s and the process that brings new treatments to market. Sessions are led by experts from institutions such as the National Institutes of Health.
Launched in 2008, the program was founded on the belief that creating a place at the table for people with Parkinson’s disease to share their viewpoints and experience is critical to moving the development of treatments for PD forward — yet it is all too often overlooked.
As PDF Executive Director Robin Elliott said of this ultimate collaboration, "At PDF, we believe that when members of the Parkinson’s community are equal stakeholders – alongside research professionals, government agencies and private industry – their presence will improve clinical studies."