Parkinson's Information Service (PINS)
- Have questions about your medications?
- Need help finding a physician or support group?
- Watch leading scientists discuss medications, symptoms and strategies for living well
- Available 24 hours a day, 7 days a week from the comfort of your own home
Advocacy Case Study
The Clinical Research Learning Institute
Launched in 2008, the Clinical Research Learning Institute (CRLI) provides people with Parkinson’s with the knowledge and skills necessary to be effective representatives within the clinical research enterprise. The CRLI was founded on the belief that creating a place at the table for people with Parkinson’s disease (PD) to share their viewpoints and experience is critical to moving the development of treatments for PD forward — yet it is all too often overlooked.
The CRLI offers a multi-day training to prepare people with Parkinson’s disease for such activities as: educating the broader community about the importance of clinical research; providing research sponsors and investigators with input on trial design, implementation, and evaluation and serving on Institutional Review Boards (IRBs) and Data Safety Monitoring Boards (DSMBs).
Experts from all sectors of the clinical research enterprise — including researchers, trial coordinators, and government and industry representatives serve as faculty for the Clinical Research Learning Institute. Learning Institute participants will have the opportunity to engage in continuing education activities and ongoing communications with other graduates. The Clinical Research Learning Institute takes place once per year and participants are selected through a formal application process.
