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Parkinson's Community Choice Research award

 


Community Choice: FAQ

What is the PDF Community Choice Research Award?
The PDF Community Choice Research Award is a scientific grant developed by the Parkinson’s Disease Foundation (PDF), as part of $5 million in grants we fund annually to reveal causes, advance therapies and end Parkinson’s disease. This grant supports research ideas that come from people who are touched by Parkinson’s disease. It is the first to be driven entirely by the Parkinson’s disease community.

What Will the Community Choice Research Award Fund?
It will fund a research question(s) posed by community member(s) who respond to our five-day poll.

Who Can Submit Research Questions?
People with Parkinson’s and care partners are invited to submit one priority each. While we value feedback from other individuals, this award is designed to solicit research questions from people with Parkinson's and care partners only.

Who Receives the Grant?
In 2014, PDF will fund leading scientists to research one or more of the question(s) posed by the community. The scientific team will be chosen by a committee that includes PDF’s scientific advisory board members, Research Advocates and the individual who submitted the question(s). To see what type of research questions are trending, view real-time results on our website at www.pdf.org/communitychoice_results.

What Types of Question Can I Submit?
We invite questions of all types based upon what is important to you.  Questions are limited to 180 characters.

To develop your submission, ask: if scientists could answer one question about Parkinson’s, what would it be? For some, it may be a question about a new treatment for Parkinson’s, or the effectiveness of an exercise program (does yoga ease symptoms of Parkinson’s?). For others, it may be learning more about a certain symptom, or a biological or genetic cause of Parkinson’s (Does [insert your priority] lead to a greater risk of Parkinson’s?  

To choose your questions, we recommend browsing real questions here, submitted early by PDF Research Advocates.

How Can I Submit My Research Priority?
Questions must be submitted between Monday, September 30 and 5:00 PM ET on Friday, October 4 in one of the three ways:

  • Online: visit our poll here submit your priority research question.
  • In-person: going to the World Parkinson Congress in Montreal? So are we. Visit booth #1411 to submit your priority.
  • Phone: if you do not have access to a computer we will accept submissions via phone at (800) 457-6676 between the hours of 9:00 AM ET and 5:00 PM ET.

How Many Questions Can I Submit?
Each person with Parkinson’s and care partner can submit only one question.  We invite you to share the online poll with others in the PD community.  

  • Tell your support groups members.
  • Share on social media, such as Facebook (follow us here) or Twitter (follow @PDFparkinson and use #mypdpriority).

What Happens if My Question is Chosen?
If your question is chosen, you will be asked to be part of the advisory committee that chooses scientists to discuss your question.