Community Choice: FAQ
[+] What is the PDF Community Choice Research Award?
A. The PDF Community Choice Research Awards are the first grant awards in the Parkinson’s community to set research priorities based on the insights of those living with the disease. By seeking feedback directly from the community, the awards help to align scientific research with patient priorities and accelerate solutions for unmet needs.
[+] Who can vote in the PDF Community Choice Research Awards survey?
A. People with Parkinson’s and care partners are invited to participate online here. While we value feedback from others, including health professionals and will review your feedback, only responses from people with Parkinson's and care partners will be eligible for funding.
[+] How many times can I vote?
A. Each person living with Parkinson’s and care partner can vote one time.
[+] What topics are funded via the Community Choice Research Awards?
A. Since 2013, the Community Choice Research Awards have helped PDF to identify four unmet needs — cognition, dystonia, fatigue and gastrointestinal dysfunction — that are troublesome for many people with with Parkinson’s, but receive limited attention and research funding.
PDF has invested $600,000 in research to find solutions for these unmet needs. Which topics will be next? Your votes will decide.
[+] Who is awarded Community Choice Research Award grant funding?
A. For each area of unmet need identified by the community, PDF invests in an expert roundtable made up of scientists, health professionals and patient advocates from around the world. The roundtables includes those with expertise in Parkinson’s and those with expertise in other areas (cancer, MS, gastroenterology) who can help us find solutions. We invite up to two people with Parkinson’s and care partners who voted in the Community Choice Research Awards survey to participate in roundtables.
In a second round of funding, PDF awards translational research grants for basic or clinical science proposals from individual investigators, which seek solutions for the four unmet needs identified by the Parkinson's community.
See an update on previous Community Choice Research Funding here.
[+] What types of questions does the survey include?
A. As part of the Community Choice Research Awards survey, people with Parkinson’s and care partners are asked choose their top three priorities among a list of approximately 35 topics, and are given the opportunity to add their own. Note: the list does not include topics already being funded by the PDF Community Choice Research Awards (cognition, dystonia, fatigue and gastrointestinal dysfunction).
We recommend, before completing you survey, that you browse this list of topics — available for download here — so you are prepared to make your selection.
You will also be asked questions about your demographics (e.g., gender, ethnicity). These questions are not required but help us to better understand the community. Finally, you will be asked for your contact information. You do not have to share this information; however, if you are interested in being invited to participate in a research roundtable, this information must be available. The survey includes a total of 11 questions, none of which are required.
[+] How can I participate or vote?
A. Voting is open from Tuesday, September 20 through 5:00 PM ET on Tuesday, November 1, 2016. Here is how to vote:
- In-Person: Visit booth #406 at the 4th World Parkinson Congress.
- Online: vote online here.
- Phone: if you do not have access to a computer we will accept submissions via phone at (800) 457-6676 between 9:00 AM ET and 5:00 PM ET.
[+] How can I participate or vote?
A. We invite you to share the online survey with others living with Parkinson’s and their care partners so we can better understand what is important to the community.
- Are you on Facebook? Update profile photo with ‘I voted’ frame here.
- Are you on Twitter? Tweet your priority and mention us @PDFparkinson.
- Are you at the World Parkinson Congress? Stop by booth #406 for your ‘I voted’ sticker (also available for download here).
- Print this information for your support group. Vote together at your next meeting.
- Email members of your Parkinson’s network.
- See what's trending! Our live results are available here.