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Community Choice Research Award

Diane Cook

It is so important for us all to take a moment to submit ... to voice our priorities and help change Parkinson's research. Now is our time to speak up.

~Diane Cook 
Member, PDF People with Parkinson's Advisory Council
& Advisor, ProjectSpark

Community Choice Research Award

Who Has the Next Big Idea for PD Research? You Do.

The Parkinson’s Disease Foundation (PDF), through its Community Choice Research Awards, invites people living with Parkinson’s disease and care partners to guide research by sharing their insights and priorities for research.

Through these awards, PDF opens a survey to people with Parkinson’s and care partners. Responses are reviewed by our Scientific Advisory Board to better understand community needs, and to select top unmet needs for funding.

To date, PDF has invested $70,000 for experts to study four topics in Parkinson's identified through the Community Choice Research Awards — fatigue, gastrointestinal dysfunction, cognition and dystonia.

How can we solve these unmet needs? Initial funding supports gatherings of experts in Parkinson’s and related areas to assess where we are in understanding and treating these symptoms, and what needs to be done to move the field forward. Each group includes community member(s) who suggested the idea to provide insights and remind the group of our urgency for finding solutions.

Each group is charged with develping outcomes and deliverables to advance the field. Whether in the form of future research studies or community education, the goal is to continue advancing toward solutions for people living with Parkinson’s disease.

Update: PDF has opened up $500,000 in additional grant funding for scientists studying the four symptomatic areas identified through these awards.  See PDF request for applications for the Community Choice Translational Research Awards here

Learn More:
Where Are They Now? Community Choice Research Awards in Progress
Meet Participants: Anne and Jim’s Story of Fatigue
Read Frequently Asked Questions Here

Note: The next Community Choice Research Awards survey will open in September 2016. Stay tuned to this page for more information.

PDF thanks its People with Parkinson's Advisory Council and the ProjectSpark Foundation for their support and partnership on this initiative.