Participate in Research
Now that you have learned a bit about clinical research and its importance, perhaps you are interested in participating in a trial, or in exploring whether to donate your brain to research.
Note: As of Tuesday, July 3, 2012, PDtrials.org has closed.
PDtrials, led by PDF, was created in 2004 to increase the community's awareness of clinical trials and provide up-to-date information on trials enrolling people with Parkinson’s and their family members. PDF launched PDtrials, as a community initiative led by PDF in collaboration with the American Parkinson Disease Association, The Michael J. Fox Foundation for Parkinson's Research, the National Parkinson Foundation, the Parkinson's Action Network, The Parkinson Alliance and WE MOVE. The campaign was advised by the National Institute of Neurological Disorders and Stroke (National Institutes of Health), the Parkinson Study Group, the Parkinson Pipeline Project and the Parkinson's Institute and Clinical Center.
We encourage you to go to the following resources to learn more about getting involved in Parkinson's research.
National Institutes of Health
This website offers a registry of federally and privately supported clinical trials conducted in the United States and around the world. This service of the National Institutes of Health provides patients, family members and the general public with current information about specific clinical studies as well as general information about the clinical trials.
Fox Trial Finder
Michael J. Fox Foundation for Parkinson's Research
Fox Trial Finder is a web-based clinical trial matching tool to connect those with and without Parkinson's disease to Parkinson's clinical research opportunities that urgently need their participation. After volunteers input information about themselves (such as zip code, date of birth, and brief medical history), Fox Trial Finder provides trial match suggestions. Fox Trial Finder also provides the opportunity for volunteers to connect directly with trial coordinators through a secure messaging interface on the site. Register for Fox Trial Finder today to play a part in accelerating recruitment into PD clinical research!
NIH Clinical Research Trials and You
National Institutes of Health
NIH Clinical Research Trials and You is an online resource to help people learn more about clinical trials, why they matter and how to participate. Visitors to the website will find information about:
- The basics of clinical trial participation;
- First hand experiences from actual clinical trial volunteers;
- Explanations from researchers; and
- Links on how to search for a trial or enroll in a research matching program.
Parkinson's Advocates in Research
Parkinson's Disease Foundation
Parkinson's Advocates in Research (PAIR) is a signature program of PDF that brings together the people who live with Parkinson's and the people who are developing new treatments. PAIR offers in-person trainings and an online course that provides people with Parkinson's and care partners with the scientific knowledge and leadership skills needed to bring about better treatments at a faster pace. The cornerstone of the PAIR program is a network of moret han 200 PDF Research Advocates from 42 states who are actively changing how research is done by speeding drug development, increasing trial participation and informing the PD community about research.